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Has anyone been diagnosed with GFAP
Autoimmune Diseases | Last Active: Oct 26, 2024 | Replies (61)Comment receiving replies
@gardrums123 Good evening and Welcome to Mayo Clinic Connect. This is an online forum for people to ask questions and get answers and help from other members. I found this site because I, too, was diagnosed with an autoimmune brain condition. I was so stunned by the diagnosis, that I wasn’t comprehending anything that was said to me. Once I got help at a university hospital and started treatment, I was able to begin to understand. My husband really took charge and made sure i was everywhere I needed to be. Now, 6 years later, no one would ever know that I have an autoimmune disorder. There is hope!
I looked up GFAP and it is rare, so I’ve never heard of it before. While we wait for other members to join our discussion and help you with answers, please feel free to ask me anything you would like and I’ll try to answer.
Were you given any information so that you could become an expert on GFAP? Has your husband started treatment?
Replies to "@gardrums123 Good evening and Welcome to Mayo Clinic Connect. This is an online forum for people..."
Could I know what kind of prescription and does you take after you left hospital? After testament, my father can walk a few steps. He is taking Prednisone Acetate Tablets and Mycophenolate Mofetil Dispersibe Tablets. Taking these, he has risk of lymphoma and other malignancies. The other patient in the same hospital died of lymphoma one year later after he left hospital. That makes me worry a lot.
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Thank you Becky for responding. My husband is on treatment. He now is having some secondary problems with the treatment. High liver count and high A1C, so we are dealing with that.
We do have info on the disease but most of it is written with lots of medical terms.
We keep having hope he will get better and better with time, but it seems there is no guarantee for that. Each person seems to be different in how their outcome is.
Thank you so much for responding.