Neuropathy moving from feet to legs

Posted by tessie63 @tessie63, May 15, 2023

I have neuropathy in my hands and feet from three sessions of chemo I had about three years ago now. I have a lot of pins and needles in both my hands and feet but no pain which is a blessing I guess. These pins and needles are none the less annoying. I drop a lot of things and am unable to open things without help. I live by myself and have had to formulate my own ways to do so many different things. I am now experiencing these pins and needles climbing up my legs and that worries me. Has anyone else experienced this? If so have they stopped there or is it possible for them to go else where in my body?

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@lecowing

Same here. I have hearing aids and it is getting harder to put them in. I am turning 86 in August so I guess I should be thankful I can still write, but not touch type any more.

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I also have PN in my feet for past 5 years and moving up into shins. Thankfully no pain and no balance issues so I am able to exercise pretty vigorously i.e. step aerobics, weight lifting and elliptical. Although I'm 70 I am very active. The more active I am the less noticeable it is throughout the day. If you can exercise etc I would do all you can.

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I have numbness in both feet and both hands. I too, thankfully, experience no pain but have had a great deal of weakness especially in legs. Physical therapy has helped me a great deal with strength, balance, and gait issues and recently began working on hand/finger strength and coordination. I fully understand the frustration of not being able to grasp objects and constantly dropping things. Many exercises you learn at PT can be continued at home to keep the strength you have gained. You Tube is a good source for these kinds of exercises as well. I believe we are better off when we get moving rather than just letting deterioration continue.
I halos experience numbness creeping up my legs, sometimes just one leg or the other, or sometimes in one knee but it goes away. I suspect diet is has an effect. I try to eat healthy but it seems when I lapse, too much sugar or salt or bread, I feel it the next day as soon as I open my eyes. Hydration is important for me as well. If I don’t drink enough water I feel it especially in my hands. They tingle more and get kind of pruny, like being in bath too long.
Hope some of these things help you along.

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Do you have any issue with twitching?

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@bb0753

I also have PN in my feet for past 5 years and moving up into shins. Thankfully no pain and no balance issues so I am able to exercise pretty vigorously i.e. step aerobics, weight lifting and elliptical. Although I'm 70 I am very active. The more active I am the less noticeable it is throughout the day. If you can exercise etc I would do all you can.

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I was still active at 70--golf, bowling, traveling, -- but things went downhill when I got to be 79, especially with regards to balance. Hope you fare better.

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@lecowing

I was still active at 70--golf, bowling, traveling, -- but things went downhill when I got to be 79, especially with regards to balance. Hope you fare better.

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I know how you feel. I was active at 70 also and then along came cancer and chemo and now I’m 75 and unable to walk or stand without my walker. Life can be cruel sometimes but we carry on don’t we. Wishing you all the best.

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@mitfit - My circumstances are about the same and I see @lecowing also says the same. The way yours has progressed is the same as mine. One foot, then the next, then numbness moves upward. In 2018, I was told that I have "a little in the hands" but that has not been too much of an issue other than picking up small things. I am fortunate not to have pain but that constant tight sock feeling, numbness with poor balance is an on going problem and you are unfortunately right, not much to stop it. As I've been told by some docs, try to treat the symptoms if you can, but don't chase down the cure.

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Right. And learn how to live around it. I have been dealing with this for over 20 years. At first the physician told me to elevate my leg. Geez! I have opted not to take neurontin. With me it is familial as my father had it and so do two of my brothers. Sometimes the feet make it so hard to sleep!

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Hello! So many here mention various neuropathy symptoms, balance is often mentioned, but little to no pain. That's my situation. When I first began meeting with doctors about my peripheral neuropathy, they appeared at first not to believe that I was essentially pain-free (pockets of arthritis, sure, but none that I associate directly with my PN). Poor balance is definitely an issue. Fortunately, I've not fallen, thanks to lots of "better balance" practice. Despite my wobbliness, I am able to continue with my balance practice; also, I'm able to ride a stationary bicycle and do other sorts of exercise: stretching, isometrics, and other sorts. My ambition is just to keep working at it, the hope being to arrest or at least slow any progression of my symptoms. I wish all of us well in our struggle with our various forms of neuropathy. ––Ray (@ray666)

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@mitfit

That sounds like what I experienced. It started in right foot, then the left, and then moved up the legs, progressively over time and now also in hands. I’m not aware of any way to stop it …

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Same thing here with me! Only, I have problems with my left foot/leg.
I am newly dianosed with peripheral neuropathy.
Do you have a doctor/neurologist (nerve doctor?) The neurologist diagnosed me.
Maybe, it's time for you to check out a Neurologist. They can test and treat your condition. If it is in fact, PN.
Try a Mayo doctor. They seem to be top notched in their prospective fields!
In the meantime, you can help yourself by staying ACTIVE, eating a balanced diet, and getting enough test.
Hope this helps, Pat

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@paktoledo

Same thing here with me! Only, I have problems with my left foot/leg.
I am newly dianosed with peripheral neuropathy.
Do you have a doctor/neurologist (nerve doctor?) The neurologist diagnosed me.
Maybe, it's time for you to check out a Neurologist. They can test and treat your condition. If it is in fact, PN.
Try a Mayo doctor. They seem to be top notched in their prospective fields!
In the meantime, you can help yourself by staying ACTIVE, eating a balanced diet, and getting enough test.
Hope this helps, Pat

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I am a long-time patient of Mayo and they do help. Love Mayo! Thank you for your kind and helpful thoughts.

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