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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: Aug 24 6:34am | Replies (162)

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@sandiw77

Hi @sheralee, I just had my first Kevzara injection on Tuesday. So far, so good. No side effects and a very slight improvement in shoulder pain. I’m on 17.5 mg of prednisone and my pain has been present since my last taper. I have been unable to taper for the last 2 mos. But have bounced around with prednisone for the past year with one taper as low as 12 mg only to inch back up again. I’m exactly who they describe in the Kevzara literature. Praying that I can move forward and leave Prednisone and the bad side effects behind. Prayers for remission for us all! ❤️
Sandi

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Replies to "Hi @sheralee, I just had my first Kevzara injection on Tuesday. So far, so good. No..."

I'm happy to hear you have started the treatment with Kevzara and hope to hear of your improvement. I take Actemra with no side effects, and it made a difference in the way I felt, as well as finally lowering my prednisone. Be patient; it takes time and is worth waiting for. My best.💞

Hi Sandi!
I started Kivzara 200 before three weeks and got my second dose last week. I already feel a slight improvement. For now, no side effects. I am tapering Prednisone (now 6 mg) and intend to stop Metotrexate 15mg )which was no use for me at all.

Thanks! We sound so alike. I’m down to 12.5 from 20 on prednisone & 3rd dose of Kevzara on Monday. No side effects yet & feel fine. Got a 2nd opinion from other Rheumatologist & he 100% agreed with plans & to go slow on weaning. Pain is at bay still.