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Cisplatin: What was your experience on this drug?

Gynecologic Cancers | Last Active: Dec 22, 2023 | Replies (25)
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@cancerback

Hi,
I had six infusions of Tivdak and did really well except for peripheral neuropathy. We had to stop the infusions in April and the PN keeps getting worse. It's a phenomenon known as coasting. I now have difficulty getting up from chairs and up and down stairs and use a cane for walking.
My last scan showed I was stable and my next one will be in July. Because of the PN I will be unable to do any further Tivdak or platinum chemos. Thanks for your care and concern.

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Replies to "Hi, I had six infusions of Tivdak and did really well except for peripheral neuropathy. We..."
tjperry | @tjperry | May 26, 2023

I have been thinking about you and praying for you! Thank you for the update! I am sorry to hear about the neuropathy you are experiencing and that it is getting worse. I will pray that this will get better for you over time!
I'm happy to hear that your scan looks good!!

I am also experiencing some neuropathy during my treatment with Carbo/Taxol. I am receiving some acupuncture treatments that are helping with that, but I have one more treatment on June 6th. My acupuncturist said in addition to "sandwiching" my chemo infusion with acupuncture she would like to add an additional treatment if the neuropathy remains this time. Do you have acupuncture available to you? They have some philanthropy grant money available to cancer patients at the facility that I am at so it makes these treatments much more affordable.

I am nervous because it has gotten worse with each treatment and has started earlier each time. I have heard it can show up months after treatment too.

Do we ever stop worrying about the cancer returning or the side effects showing up later???

God bless you and know that prayers are being said for relief for you from neuropathy!!!!
❤️🙏❤️

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