← Return to Health seems to be deteriorating: CSS? Fibro related?

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Health seems to be deteriorating: CSS? Fibro related?

Chronic Pain | Last Active: Jun 15, 2023 | Replies (34)

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@rwinney

Your situation sounds like an example of what my Florida PRC doctor, Dr. Sletten, prepared us for. Being blind sided by life and it impacting us physically, emotionally, and behaviorally. He said, "the one thing we can count on in life is change" (he was not lying!), and then reminded us that we will be so much better prepared for these curve balls since going through 3 weeks of an intensive rehabilitation program and learning tools to help get us through and keep us in our C-life.

As you, and I, learned in the PRC - acute pain is temporary and should resolve within 6 months or so, while chronic is long lasting, treatments become less effective, symptoms don't match up to test results, etc. I believed you mentioned prior that your doctors blamed fibro and CSS, and that Mayo docs said you were in severe functional decline before. The bags and not sleeping is stress from what you've been through. Stress over pain, Pain from stress. The cycle of pain continues. Pain behaviors increase, as well as deconditioning.

I agree with making sure you have seen all doctors in order to rule out "acute" diagnosis, and work on a recovery plan. This might help make you feel more comfortable moving forward and deciphering what you're faced with. Getting back on the CSS rehab train using your PRC toolbox and PRC resources will always be there for you.

It's no wonder you are exhausted with bags, you've been through a lot that's for sure, but don't give up hope! You can get on track again. You can make progress. You can shift your mindset. While you are figuring out doctor stuff, please get out your PRC manual, notes, PT book and read. Even watching the CSS video might help. It has helped me over the years tremendously.

Many graduates fall back to their B-life and have to hit restart. You are not alone. You restart as many times as you need to, when you're ready. Have you emailed your PRC doctors and therapists for support and their advice? You can hop on the PRC private Face Book support group to learn from others experiencing similar set backs. Do you still have you your books and contact info?

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Replies to "Your situation sounds like an example of what my Florida PRC doctor, Dr. Sletten, prepared us..."

Oh I didn’t know there was a Facebook group what’s it called?

Thank you so much these are some encouraging words. I also have a lot of structural issues going on. Lumbar curvature, c3 issues, t6-t7 issues, SI joint mild degenerative arthritis, reversal cervical lordosis, so forth… so I know it’s a whole mix of everything.

It’s more the paralysis that I’m concerned about that’s new and my skin being mottled. I definitely need to rule those things out for additional underlying problems. Because I know it’s not fibro or CSS.

Thank you again so much this was super helpful! I’d love to join that Facebook group! PRC hasn’t given me much resourceful answers and my past doctors told me they were for temporary care but I’ll get all the answers down the road. It’s that “gut instinct too” like when I was misdiagnosed with Ankylosing spondylitis and went to Mayo the first time and go my fibro and css diagnoses correctly diagnosed