1. < Esophageal Cancer

Has anyone undergone the folfox chemo treatment?

Posted by allenmm60 @allenmm60, May 1, 2023

I am writing this for my father who has recently been diagnosed with stage IV adenocarcinoma. He has been given the treatment option of folfox and would like to get more information about how patients have responded to treatment, side effects of the chemo, and any other information he could get. I greatly appreciate any and all insight you may have. Thank you.

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jmp1514 | @jmp1514 | May 25, 2023

I’m curious about the efficacy difference (if any) between the 46 hr vs bolus infusion of 5FU.

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brinah23 | @brinah23 | May 25, 2023
In reply to @jmp1514 "My husband started FOLFOX with immunotherapy and targeted therapy every 2 weeks for stage 4, HER2+..." + (show)
@jmp1514

My husband started FOLFOX with immunotherapy and targeted therapy every 2 weeks for stage 4, HER2+ esophageal adenocarcinoma in February. His side effects have been minimal-mostly fatigue for the first 3-4 days after infusion. Chemo is given at the infusion center except the 5-FU that they start and out on a pump for home infusion. After 46 hours i disconnect the infusion.
He just had a scan done and the results are amazing!

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Praise God. Please pray for amazing results for us as well. Thank you.

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2 replies
jmp1514 | @jmp1514 | May 25, 2023
In reply to @brinah23 "Praise God. Please pray for amazing results for us as well. Thank you." + (show)
@brinah23

Praise God. Please pray for amazing results for us as well. Thank you.

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Prayers going up. Please keep us informed. Hang in there!

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56899t52 | @56899t52 | May 26, 2023
In reply to @dsh33782 "I have had 28 days of radiation and chemo for esophageal cancer and it seems to..." + (show)
@dsh33782

I have had 28 days of radiation and chemo for esophageal cancer and it seems to have worked. My last PET scan was clear of cancer tumor. But I did have lots of side affects including constant caughing, nausea, diaherra, tingling in hands and feet, and always tired. But it is great to be done. Have you got target for completion of treatment?

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In addition to the PET scan, do you also do an ultrasound endoscopy w biopsy? I am finished with the same treatment and was told I have to have a PET scan and ultrasound endoscopy very three months for the first two years post treatment.

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1 reply
Mentor
Don Higgins, Volunteer Mentor | @dsh33782 | May 26, 2023
In reply to @56899t52 "In addition to the PET scan, do you also do an ultrasound endoscopy w biopsy? I..." + (show)
@56899t52

In addition to the PET scan, do you also do an ultrasound endoscopy w biopsy? I am finished with the same treatment and was told I have to have a PET scan and ultrasound endoscopy very three months for the first two years post treatment.

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Yes, I also had endoscopy along with the PET scan. They took biopsy and it came back clear of any cancer. I also am scheduled for another PET scan in 3 months, but do not have another endoscopy scheduled. Did you get results of biopsy yet?

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1 reply
56899t52 | @56899t52 | May 26, 2023
In reply to @dsh33782 "Yes, I also had endoscopy along with the PET scan. They took biopsy and it came..." + (show)
@dsh33782

Yes, I also had endoscopy along with the PET scan. They took biopsy and it came back clear of any cancer. I also am scheduled for another PET scan in 3 months, but do not have another endoscopy scheduled. Did you get results of biopsy yet?

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endoscopy is Tues

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lisakinghartness | @lisakinghartness | May 27, 2023
In reply to @brinah23 "Praise God. Please pray for amazing results for us as well. Thank you." + (show)
@brinah23

Praise God. Please pray for amazing results for us as well. Thank you.

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Yes, Praise God for his amazing results. I wish my husband’s were the same. Unfortunately, his has spread to a couple of different places and that therapy is not effective there. His main troubling side effect was strong fatigue, and he struggled with his digestive system.

Grateful for success for you all!

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