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Medication efforts:

Osteoporosis & Bone Health | Last Active: Jun 25, 2023 | Replies (47)

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@cloud60

My bones are bad enough but it would take a special letter I guess from my endo to the insurance. So far the endo I’ve had hasn’t advocated for me well enough. Maybe there is a special form I have to get for exceptions from the insurance but my insurance called me and said I have to do what they say is a step program where you try each of their medications in steps. ( which is their list of cheapest to most expensive) The first was daily fosamax. The next is Boniva tablet. Which I don’t want bc it’s 30 days in your body and I can’t tolerate weeks if side effects. I only want to try a daily anything pill or shots. Because I need to be able to stop if it’s bad.
I would never take Prolia bc my Endocrin said it’s the only one you are permanently on medication from

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Replies to "My bones are bad enough but it would take a special letter I guess from my..."

I hope your doctor advocates for you, if your DEXA's are seriously low. Does your insurance still have the step program if osteoporosis is severe? Your doc should be able to explain the need for bone builders like Forteo, Tymlos or Evenity rather than the bisphosphonates. In fact the bone builders have been shown to work better when used first.

Prolia is not permanent. You just can't stop it without going on a bisphosphonate like Reclast, Fosamax etc. for a time. One poster here is doing one dose of Reclast OR a year of alendronate, after Prolia and posted a study n this in another thread.

When you stop Prolia, there is a rebound drop in bone density and increase in spinal fractures unless you do another med, possibly just short term. But you have to be careful about the timing of that switch- not too early and not too late.