Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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I am having severe hand pain as well. Fortunately, on Tuesday I get to see a physical medicine and rehab doctor at U of M who specializes in cancer patients. Hopefully he will have some suggestions on ways to get the pain in my hands and hips to abate. Good luck to you!

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@brianphilip

Dear Eliz
I am 78 and a long while postmenopausal and taking Tamoxyfen
now for a year without any noticeable side effects. I had a cancer removed from my right breast last year and a single Intraoperative radiation therapy (IORT)
My present Oncologist is 65 years old and was the top Professor of the Main Hospital and retired. He consults today in a private clinic.
He is the one who changed my medication to Tamoxifen 20 mg a day and explained to me that in my case Tamoxifen will have the least side effets as compared to all other recent inhibitors.
I have been taking Tamoxifen for a year now and feel good without any side effects.
I only miss my Female Estrogen which the Tamoxyfen inhibits which gave me a lot of energy and pep.
Maybe Tamoxifen is not meant for all breast cancers but am shocked as to the side effects of anastrazole
Thank you
Celia Brianphilip

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@brianphilip and @elizm, side effects are tricky. Everyone reacts differently. You're quite right @brianphilip when you said that Tamoxifen will have the least side effects *in your case*. Because he is your doctor, he has your full medical record and history and is able to knowledgeably make that assessment. And it seems he was correct as you are luckily experiencing few to no side effects.

@elizm is also right. For many women, AIs offer fewer side effects than tamoxifen, but some of the side effects that women do experience from AIs are really difficult, causing some to change to a different AI or to stop altogether.

The most important thing to remember is to discuss side effects with your cancer care team. There may be alternatives, like switching to or from tamoxifen or changing the AI or, depending on your risk factor, reducing the length of time of treatment. Or, yet again, there may be help in managing the side effects.

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I was on anastrozole for 2 months and had to go off due to many of the side effects . One month off and I still have problems with shoulder , wrist swelling and severe enough pain to keep me awake . My dr is not going to put me on a different one . I do know a lady on it for a year at my church and she seems fine . It wouldn’t hurt to try it . Don’t assume you will be affected till you are

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My side effects have been ‘brain fog’, forgetfulness, and memory loss. Has anyone else experienced this? My issues started a few weeks after I started on anastrozole.

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@guntherbear

I am on Aromasin. I have tried Tamixifen and Arimidex and could not handle the memory loss with them. I have joint ache with aromasin and have gained 30 lbs. But I found out that working out 5 days a week for 20 minutes has really helped with the joint ache and I also lost some weight. I had a double mastectomy and I am half way thru my 5 years. Oh and I average 32 hot flashes a day 😔. But I feel the side affects are way better than cancer recurrence 😊@mollymiller

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@guntherbear You are one of the few here who have mentioned memory loss. I have been on anastrozole for 3 months and have noticed memory loss and ‘brain fog’ also. It’s very frustrating but I’d also rather have that than cancer.

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@lisman1408

@guntherbear You are one of the few here who have mentioned memory loss. I have been on anastrozole for 3 months and have noticed memory loss and ‘brain fog’ also. It’s very frustrating but I’d also rather have that than cancer.

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I'm only a some time user on this very good website....I am coming up on my 2 year mammogram. I completed lumpectomy surgery for a stage 2 breast cancer in January 2017. I completed 37 radiation treatments and then began Arimidex in MAy 2017. It hasn't been all that pleasant, but breast cancer isn't either. I would trade hot flashes and body pains for the assurance that my cancer is under control......Not much more I can add at this point. Until that next mammogram shows up negative, I will not rest easy.

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I hate to say it but I am glad I am not the only one with the memory issues 😊. It is so frustrating at home and at work. I actually pretend that I remember what my co-workers or family are talking about when they say “do you remember when ...”

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@mollymiller

I'm only a some time user on this very good website....I am coming up on my 2 year mammogram. I completed lumpectomy surgery for a stage 2 breast cancer in January 2017. I completed 37 radiation treatments and then began Arimidex in MAy 2017. It hasn't been all that pleasant, but breast cancer isn't either. I would trade hot flashes and body pains for the assurance that my cancer is under control......Not much more I can add at this point. Until that next mammogram shows up negative, I will not rest easy.

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Molly, I had my two year mammogram on Dec 21. They took two hours and came back asking me to get a biopsy after the first of the year. Needless to say the word "recurring" scared me to death. I had my biopsy on the 8th, then 4 more days of stressful waiting! Thankfully, it was benign!! Keep the faith even when you are going to dark places.

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@guntherbear

I hate to say it but I am glad I am not the only one with the memory issues 😊. It is so frustrating at home and at work. I actually pretend that I remember what my co-workers or family are talking about when they say “do you remember when ...”

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Thank You!!! I very much appreciate your response! I’m so frustrated with it. My husband thinks I’m going crazy. I also pretend to understand sometimes.

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