← Return to Multiple Sclerosis (MS) - please introduce yourself

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@brandilyn430

Hi! I'm 46 years old and have been having worsening symptoms (of what I wasn't sure because I never put them all together) for about 5 years now. I am a mother of 4 and an RN and I work all the time. If anyone here works in healthcare, you know we never take care of ourselves appropriately. It started with tingling extremities. Weird electric shock type pains. Some urinary incontinence, but rare enough that I wasn't paying attention. And again, 4 kids. But then I was walking one day about a year and a half ago and my whole bladder just emptied randomly. On and off I have trouble finding words. I've gotten very forgetful. But I was able to find excuses for most of that. With the incontinence I finally saw a doctor. I had an mri and this was the impression...
Impression
IMPRESSION
A few nonspecific FLAIR hyperintensities are seen in the periventricular and subcortical white matter with mild interval progression. Included in the differential diagnosis is a demyelinating process, an ischemic process, a metabolic process, a vasculitis, an ischemic process, sequela of migraine headaches, and other etiologies.

My doctor wanted me to see a neurologist as soon as possible. That was over a year ago. First available to be seen was 10 months out. And then we moved. My appointment had been scheduled for last November. Where we are now I brought this info to my new doctor. He was also concerned and also wanted neuro. They, too, are many months out. I'm kind of frustrated not knowing if this is an MS situation or if I'm fine just going about my life at this point because I don't have the time or energy to advocate for myself. I'm sorry if this is not appropriate to this page since I do not have a diagnosis. I just wasn't sure where to talk about it

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Replies to "Hi! I'm 46 years old and have been having worsening symptoms (of what I wasn't sure..."

@brandilyn430 i hear your frustrations. I am going through the same. No incontinence though. But lots of pain, numbness, forgetfulness, extreme fatigue, etc. I have almost every single MS symptom. Finally getting an MRI. I wanted to suggest that you do NOT stop advocating for yourself! Please. You have a lot to live for, and as comfortably as possible. I gave up two years ago, in search for MS dx. I’m feeling much worse now. I will not give up this time. Please stand for yourself. Best of luck!