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@theway

Finished 35 Radiation and two months chemo Aug 2022 for HPV related CA on tonsils. Lost 70 lbs had Gtube (now removed) due to inability to swallow etc. Going for 3rd PET in Sept 2023. Had a previous scan that still looked hot but biopsy showed no CA cells. Some foods I just don’t like taste of anymore and little saliva keeps me from others. Greasy fish (salmon) or meats (burgers brat worst) easier to get down too. I drink 350 cal ensure, dole fruit cups and cheerios regularly. Also frozen (obviously cooked) vegetables daily. Scrambled eggs. Very little bread crackers cakes etc as they are too dry. My wife says I’m too skinny but I actually like my weight as I am weighing what I did when I was in the Army 50 years ago. Just finished the last 100km of Camino in Spain going to join gym to try and add muscle mass without adding weight. Loose skin like many oldsters! Keep a bottle of water handy at all times still get a little freaked about choking. Take heart. It gets better but never like before. I tell people it’s like surviving a major car wreck as you will carry remnants of the “accident “ forever. Live your life as best you can every day thankful for it. (I am going back for more Camino) We are blessed to be in the fraternity of survivors for the rest of our lives no matter how long that may be. So when you can physically, get off the couch out of the house and be alive (I walk then walk some more). I wish you health, better days ahead and God’s Blessings.

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Replies to "Finished 35 Radiation and two months chemo Aug 2022 for HPV related CA on tonsils. Lost..."

Thank you for your kind words. My hubby’s RO said they would repeat the PET scan in July. If still activity, then a biopsy would be done. He is regaining his health and strength, so we are not anticipating bad news. Your note was most encouraging. The camino.. how lovely. That has been on my bucket list for many years. Did you use a company to plan your trip and if so which one? Doing it in 100 km journeys seems just perfect to me. And yes, the fraternity of survivors is a powerful thing. We are blessed be be alive and living life. He is very aware of this gift. Blessings to you as well.