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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Apr 15 10:57am | Replies (80)Comment receiving replies
If your oncologist is not a NET Specialist, get one! That is the number #1 suggestion you will here from everyone on this site. NET is very rare and a lot of oncologists even very good ones have not seen NET or enough cases. Have your very good oncologist refer you to a NET specialist, that is his job to get you the very best care available. Let’s us all know how we may help you further. You got this!
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Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour recurrence and no new liver lesions! So I will continue on Lanreotide until it no longer works( hope it will work for a long time!). 💜🦓