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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)
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@kim1965

If your oncologist is not a NET Specialist, get one! That is the number #1 suggestion you will here from everyone on this site. NET is very rare and a lot of oncologists even very good ones have not seen NET or enough cases. Have your very good oncologist refer you to a NET specialist, that is his job to get you the very best care available. Let’s us all know how we may help you further. You got this!

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Replies to "If your oncologist is not a NET Specialist, get one! That is the number #1 suggestion..."
pavlina60 | @pavlina60 | Jun 10, 2023

Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour recurrence and no new liver lesions! So I will continue on Lanreotide until it no longer works( hope it will work for a long time!). 💜🦓

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