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Health seems to be deteriorating: CSS? Fibro related?

Chronic Pain | Last Active: Jun 15, 2023 | Replies (34)

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@karlabgs

I'm so sorry to hear of your difficulties! That's so much for someone so young! I've dealt with fibro for many years but never had anything like the things you're going through, thank heavens!
I would try contacting Angel Flight, a group of private pilots who will fly (in their personal small aircraft) patients to and from medical appointments. I don't know if Mayo has such a thing as a place for out-of-town patients to stay (for free or for nominal cost). At least maybe some of the high cost of travel might be allayed.
If you are in the US and you're not able to work, try contacting an attorney to file a Social Security disability claim, so at least you could receive some income and Medicare. It takes a while to get through the system, but it may be an option until you can recover.
I wish you the best - medical care, recovery of your health, and a good support network, Karla B

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Replies to "I'm so sorry to hear of your difficulties! That's so much for someone so young! I've..."

Thank you SO much!! This was very motivating and encouraged me to keep looking for answers and resources that are out there! Often my fatigue can be so overbearing that it seems like there isn’t another option available but I am going to make sure I look through this list of resources and go from there. Thank you so much again for taking the time to write this!