← Return to Hyperparathyroidism - Options other than to "watch and wait".

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@ripley

Update to my earlier post: Today the endocrinologist diagnosed me with Hyperparathyroidism and referred me to an endocrine surgeon. He said I probably have one or more tumors on my parathyroid glands, or the glands are enlarged and need to be removed. He recommended Reclast injections for my osteoporosis, but I am reluctant to get those right now.

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Replies to "Update to my earlier post: Today the endocrinologist diagnosed me with Hyperparathyroidism and referred me to..."

research carefully.................... drugs.com is a good start but go to research sites

I just wrote another response...........check it out and do the research.............!!!!
The parathyroid is only the size of a grain of rice and/or a pea.......so you need to have someone really qualified..............Yes, another person mentioned a parathyroid surgeon group in Beverly Hills California. I am going to the http://www.parathyroid.com clinic in florida. They have a great web site and you can see how tricky it is to find these tiny little suckers - 30% of surgeon miss it and it has to be done again. Also, there is a process to "train" the remaining parathyroids to take over - if you don't take calcium in the right amount immediately after, it can cause problems. Key word if you do research is "Hungry Bone Disease". My folder doesn't have lots of Reclast info but check out http://www.drugs.com . Side effects - safety notes for Prolia include - no pregnacy, low blood pressure, trouble breathing, tight throat, itching, hives, lower blood calcium, severe jaw bone problems, unusual thigh bone fractures, skin infections, heart inflamation, etc, etc. Reclast is in the category of a bisphophonate....along with Fosamax (27 million dollar law suite and not on the market anymore). The jaw and thigh are the big ones for atypical femur fractures.......The research papers are out there, but takes time. You don't have to be a scientist but look at the study goal in the first paragraph and
then the conclusion at the end...The local medical library can help.........pubmed.com......and also the NIH library. PS - Parathyroids are amazing and control alot of the human body.....there are 4 and you never never take out all 4. There is a radioactive tracer that can find the errant one........They are very very tiny so easy to miss - it takes a very good surgeon.
I live in Oregon in the US