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DiscussionDiagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
Replies to "My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors..."
Does your wife have carcinoid syndrome too? Her tumors and symptoms sounds similar to my husband's.
Trying to get the diarrhea under control is a real challenge too as well as itching.
He had 1st prrt therapy. Will see July what scans show. It sounds like lanreotide and cap/tem is working which is fabulous! It unfortunately these tumors don't get diagnosed early.
Thank you, kim1965! So far I am only on Lan injections. I have a very good oncologist, but am thinking after the scans in June to ask for a referral to Roswell Park in Buffalo, NY, where there are NET specialists and ask if I can be put on CAP/TEM or why not.