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Newly diagnosed with thyroid cancer and have 2 main concerns
Thyroid Cancer | Last Active: Oct 24, 2023 | Replies (140)Comment receiving replies
Hey @cocha thank you for the links! I've been reading similar findings in other studies too. I think the lobectomy was the right choice but just wonder if more could have been done diagnostically prior to surgery to get a better idea if there were any lymph nodes involved, considering how common it is for early lymph node micrometastasis with PTC. Ultrasound, cat scans, mapping the neck and lymph nodes, diagnostic low dose RAI, lymph node biopsy ... there must be some way to get a bigger picture of what's going on in there.
I am seeing my surgeon today to see what he is thinking -- he was going to present my case to his tumor board on Monday.
How are you doing?
Replies to "Hey @cocha thank you for the links! I've been reading similar findings in other studies too...."
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I am waiting for my surgery, somewhat anxious. 🙁
I have also asked my surgeon to do a lobectomy, unless they find really bad stuff when they go in there.
From the multiple surgeons I have talked to, apparently they cannot tell from the ultrasounds and other technologies available as of today whether there is a wider spread without actually looking in there when you are in OR. So I really wonder how they would tell for sure after the lobectomy if the cancer is spreading. At the same time, I am not at all in favor of taking out an unaffected side of my thyroid.
At this point, I am just exhausted with going back and forth with the doctors with questions.
@lise01 Please keep us posted on what you learn from your surgeon. Also, how has your recovery from the surgery been so far? What medications have they put you on and how is your body reacting?