My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors to count on liver. Our NET Specialist Multi-Disciplinary team started her on Lanreotide immediately along with CAP/TEM pills, and after 9 cycles (months), all her tumors on both pancreas and liver were reduced around 80%, and March 1st she finally had surgery and the Team removed remaining mass on pancreas, tail of pancreas, spleen, gall bladder, and debunked a majority of tumors on liver. She is doing ok, managing the diabetes is still a challenge, but the Team believes we have made this a mtn item going forward only maintaining the Lanreotide monthly injections. Listen to your team, each case is different and you will put this back to a mtn. Issue only long term hopefully. You got this. Let us know how we can help.

Me too! The surgery is exhausting and so are the lanreotide treatments. I worked a job I loved for a year after surgery, but ended up retiring a year ago, at age 63. I felt that the brain fog and frequent restroom breaks made it too hard to do my job well. The stress is less now, which is good. I have similar symptoms - chills, fatigue, diarrhea and headache and dizziness. I did have hair loss, but that turned out to be thyroid, which has resolved with meds (synthroid.)
I also had insomnia and take trazodone.

The good news is that there are good days and I have gotten adjusted to my new constraints. I have goals after lanreotide that might be "take a shower" or walk one block. These goals halp me be more realistic about the new me, because I won't be off on a ten mile hike anymore. On a "good" day, maybe, but I cannot predict.

Don't be too hard on yourself, giving ourselves grace goes a long way to improving our mental health.