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DiscussionDiagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
Replies to "Thank you @pavlina60. I started my first lanreotide infusion in October. I had 1 set of..."
OMG! This sounds like I wrote it!
Congratulations on the good scans! Mine is coming up in June.
But, I feel exactly the same! I am 62, but up until November I loved going to work, had a very satisfying scientifically job, with some physical demands. After surgery I could hardly wake up in the morning! And feel cold all the time! Also, not sure if it was a side effect fron the Lan injections but my hair started falling off and I have insomnia (3-4 nights out of the week I cannot go to sleep before 2:30 am, and I do feel tiredmost of the time..
Keep the fight! God bless you!💜🦓