First time post here. Briefly, my wife started losing weight and feeling fatigued in the first part of the year. As her symptoms increased she saw her PCP. Her labs came back with alarming liver function results. The PCP ordered an abdominal CT which showed a very large pancreatic mass and liver involvement. Her health was rapidly failing with greater fatigue, loss of appetite, and jaundice. After some delay, she was referred to a surgical oncologist who next day arranged for a gastroenterologist to do an ERCP where there would both be tissue biopsies to identify, grade and stage the tumor as well as to insert a metal stent into the bile duct. Opening the bile duct resolved all of her symptoms. Her liver function is mostly restored, her appetite returned and she is gaining weight. I have no idea whether your bile duct is functioning but I would think that an appropriate question for your gastroenterologist and oncologist. The biopsy found a grade 2, very large pancreatic neuroendocrine tumor. A Pet dotatate scan showed both liver and bone tumor cells as well.

As my wife's tumor is inoperable the next step is to start systemic therapy. After considering Lanreotide she and her oncologist have chosen Captem in order to shrink the tumor. She starts her first course next week.

Wishing you all good thoughts for your treatment