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Question about PMR pain locations

Polymyalgia Rheumatica (PMR) | Last Active: Mar 1 10:00am | Replies (36)

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@nyxygirl

Good morning all . First time on the PMR discussion -I have been up since 3:30 am when all 4 limbs were immovable , 1.5 months into my journey and day 28 of Prednisone , now increased to 20 mg. -- What I was looking for is a discussion about the harmonization of words patients should use to describe the locations of the pain and what actually hurts !! i am attaching one link with these medical terms ( below) :
DOES ANYONE or their doctor use the term gel phenomenon? - Thank you
"Morning stiffness and the gel phenomenon – Gelling, or stiffness with inactivity, is a hallmark of synovitis in the systemic rheumatic diseases in general, but in PMR, this phenomenon can be notably severe. Morning stiffness in PMR is invariable; its absence excludes a diagnosis of PMR."
"Functional limitations – Proximal stiffness can result in difficulties with activities of daily living, such as pulling on a shirt or coat, hooking a bra in the back, donning socks and shoes, or transferring from the supine or seated position to standing. The intensity of the gelling phenomenon, coupled with proximal stiffness, can be such that patients may require assistance with morning dressing."

From uptodate-dot-com
Clinical features — Polymyalgia rheumatica (PMR) is characterized by symmetrical aching and stiffness about the shoulders, hip girdle, neck, and torso, worst on arising in the morning, of recent onset, in a patient over the age of 50 (figure 1).

Onset – It is typically a recent, discrete change in musculoskeletal symptoms that prompts the patient with PMR to seek medical attention. The onset can be abrupt, sometimes startlingly so, seeming to occur almost overnight. A story of longstanding stiffness and aching does not suggest a diagnosis of PMR.

Pattern of symptoms – Bilateral shoulder pain is the presenting manifestation in nearly all patients (70 to 95 percent), while the neck and the hip girdle are involved in approximately 70 and 50 percent of patients, respectively. They can initially be unilateral but soon become symmetrical. Bilateral achiness about the upper arms with limitation of active shoulder abduction is particularly common and often commands the clinical presentation. Pelvic girdle symptoms manifest as pains about the groin and lateral aspects of the hips and are frequently reported as radiating to the posterior aspects of the thighs. As described above, the proximally distributed aching and stiffness represent referred symptoms from the joints and periarticular structures of the shoulders and hips.

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Replies to "Good morning all . First time on the PMR discussion -I have been up since 3:30..."

Hello @nyxygirl, Welcome to Connect. New members are not allowed to share links for a short period of time to prevent spamming in our discussions. I thought I would share the UpToDate article for you so for others who have not seen it.

--- Clinical manifestations and diagnosis of polymyalgia rheumatica: https://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-polymyalgia-rheumatica.

I see that you have already found one of the main PMR discussions - Polymyalgia Rheumatica (PMR): Meet others & Share Your Story: https://connect.mayoclinic.org/discussion/polymyalgia-rheumatica-pmr-meet-others-share-your-story/. Here is another discussion you might find helpful:
--- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/.

My rheumatologist never used the term gel phenomenon but did do a good job of explaining the morning stiffness to me along with the importance of mild exercise and stretching in the morning. He also taught me the value of keep a daily pain and dosage log to help me when I was tapering off of prednisone. I was started at 20 mg prednisone for both occurrences of PMR and within an hour or so of taking the prednisone, all of the aches, stiffness and pain were gone until the next morning. It's great that you have done a lot of research on the condition. It pays to be your own health advocate.

Did your doctor or rheumatologist tell you to watch for other symptoms like tender scalp or pain around the temple areas to make sure you also don't have GCA?

I have not heard of the “gelling “ before but the description is exactly the way my PMR started.