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@janielou56

What kind of side effects from the prednisone did you have? ...Any ringing in the ears?

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Replies to "What kind of side effects from the prednisone did you have? ...Any ringing in the ears?"

No ringing in the ears; I know that must be beyond difficult. After three years, I have lost muscle mass and strength. It took me over two years to get to 10mg. My skin was very thin and tore quickly, and my body 'bruising' often made me look like a leopard. I've heard of other things, but I have not gotten them. I still have capillaries that burst with no touch. The fatigue of the disease is much better, but I still treat my energy like money in the bank and am careful about how I withdraw it.
I've been on Actemra for three years, also. I hate to think of what it would have been like without it. My case of GCA went for almost a year undiagnosed, and it was tough to get it to simmer down. Once, I admitted to myself that I had to listen to my body...that GCA was the boss and I could help manage it. I used to nap daily for a few years but don't anymore.
At present, I take 3mg per day and still take Actemra. I know there is treatment for tinnitus. Have you been to an ENT specialist? Hope he/she can help.
It is a journey, to be sure but the good news is it ends.💞

Swollen feet and legs.
Cushy (I looked like a cabbage patch doll) which, after I was off it, left my old, non elastic skin, with major wrinkles.
Glucose reading of over 400 (up from 85-95 normal).