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Multiple triggers aka when the chickens come home to roost
Polymyalgia Rheumatica (PMR) | Last Active: Jun 3, 2023 | Replies (9)Comment receiving replies
Hello @freeme, Welcome to Connect. It's good that you are advocating for your health and learning as much as you can about PMR. You are definitely not alone in your journey. I've had 2 occurrences of PMR but fortunately it has been in remission for the past 4+ years. I think you might find the following discussion helpful if you haven't already seen it:
--- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/.
What helped me when I was tapering off of prednisone was keeping a daily log with my prednisone dose for the day along with the amount of pain I had when I first got up in the morning. Do you keep a daily log for your pain and dosage?
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I started logging 3 times per day for seven areas that had some pain, stiffness or swelling per each side about 1.5 days after I started the prednisone. I noticed some immediate improvement and had started writing notes but quickly realized that was inefficient. So I switched to a 10 point system but used 10 as the best score compared to how I was before this started. I started the prednisone at 4:30 as that is when I got it and chose 8 pm as that was when I could tell it fully kicked in, 8 am as mornings are imp and 3 pm as wanted to monitor how I felt as the prednisone ended its half- lifes in my system.