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POTS Part II: Treatment Jun 13, 2023 | By Samantha Campbell (@samanthacmaa)Comment receiving replies
Curious I have recently received a POTs diagnosis along with long COVID and other dysautonomia. I am working on getting into physical therapy, but until then what is recommended for the 45 min of aerobic activity 5 days a week? I am trying to do weight resistance exercises (ie squats and lunges with weights) and I have worked up to 7 minutes of rowing. The information my doctor gave me indicated to work up slowly from 3 minutes on the rower and I have been. Overall, my exercises take me about an hour in total but mostly because I am still slow in the weight resistance. Are there resources on an exercise program for POTs? I would like something with more structure while I wait to get in with PT so I feel like I am working the best I can with my body towards getting better. Thank you!
Replies to "Curious I have recently received a POTs diagnosis along with long COVID and other dysautonomia. I..."
Hi there- I have POTS too. It can be pretty tough to find a PT with expertise in this area, but it sounds like you have a great attitude and have already made a good start.
I realize your post is from a few weeks ago, but in case you’re still interest in seeing a more structured program, the evidence-based program that’s often referenced is called “the Levine Protocol.” There’s a modified version meant to be more accessible for patients to use on their own, “the CHOP/Dallas” program. It includes examples of resistance training exercises and a calendar. This is a POTS blog I check in on sometimes that has links to the programs: https://betterbythebeat.com/the-levine-protocol-for-exercising-with-pots/
The thing I’d try to remember would be that everyone experiences POTS and chronic pain differently and progresses at their own pace. I found the program helpful as a guide, but ultimately had to listen to my body, and balance with everyone else I had going on because it’s so rigid! My PT pointed out that these protocols were standardized and strict for research, whereas we are all humans who need flexibility and to adapt when it’s needed. We are our own experiment, and it’s okay to customize. Hope this helps, and all the best to you.
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@ashesmo58, it sounds like you are doing well with listening to your body and working at a pace that is right for you.