Drugs or exercise and vitamins?

Posted by cmiller59 @cmiller59, May 10, 2023

I recently went to a rheumatologist to get some questions answered regarding my osteoporosis. He said I had Senile osteoporosis and that he felt I definitely should take Alendronate Sodium once a week. I have also heard such horrific stories about osteo meds and am terrified to take them but also terrified not to of I need them. I am taking calcium and Vitamin D and exercise almost daily since the diagnosis. Is this enough to stop it from getting worse or should I start the meds. I want to hold off until my next scan but that isn’t until Oct. 24. Can anyone shed some light on this for me? Thank you.

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@windyshores

@trathfon62 my experience is that once we are past menopause, we lose bone naturally. The biggest drop for me was right at menopause (and also at the beginning of cancer meds that dropped estrogen further). In other words after an initial big drop, for me, the rate of loss eased- but continued. No matter what I ate, what supplements I took or how I exercised.

Tai chi helped with balance and body awareness- and other benefits. I stay away from yoga.

We are living longer. I believe a lot of us will face the need for meds, unfortunately.

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I’m afraid you’re right. I’m going to have a Dexascan in November and if things are the same or worse I’ll have to start the meds. Unfortunately, I’m not covered by Medicare yet and I was quoted $2300 a month co pay for Evenity. I’d say it’s a bit high priced!

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@teb

Just wanted to share some studies and information that’s out there on Vitamin K2. It’s a bit all over the map, somewhat inconclusive but the 45 mg comes from studies out of Japan where that dose has been used therapeutically as an osteoporosis treatment since 1995.
https://pubmed.ncbi.nlm.nih.gov/18830045/
The medicinal dose used in Japan is in the form of MK4, given in 15mg doses 3x a day. (MK4 has a shorter half life than MK7 therefore it is given throughout the day)
This is the Japanese pharmaceutical:
https://www.rad-ar.or.jp/siori/english/search/result?n=444
Some potential side effects are listed. Though more studies are needed, this is where integrative practitioners are getting that dose recommendation from. I’m not suggesting that this is what individuals should be taking, just clarifying the 45 mg dosage and offering up the info to ponder. Overall, there have been mixed results on studies with vitamin K. It may be due to confounders like whether or not supplementation included calcium and vitamin D.

Here’s a great article on Vitamin K from Cleveland Clinic
https://health.clevelandclinic.org/do-you-need-vitamin-k-supplements-for-your-bone-health/
One takeaway is that there have been mixed results based upon studies but overall, inadequate vitamin K increased the risk of hip fracture. An “adequate” dose for bone health is 90 mcg for women.

This 3 year study showed improvement with a dose of 180 mcg of MK7 (the form of K2 that has a longer half life).
https://pubmed.ncbi.nlm.nih.gov/23525894/
A study that analyzed data from the large Nurses’ Health Study found that women who consumed less than 109 micrograms (mcg) of vitamin K per day were more likely to break a hip.
https://pubmed.ncbi.nlm.nih.gov/9925126/
A study of participants (both men and women) in the large Framingham Heart Study also showed a link between low vitamin K intake and increased risk of hip fractures. This study also showed an association between low dietary intake of vitamin K and low bone density in women.
https://pubmed.ncbi.nlm.nih.gov/12540415/
This article is quite thorough in its overview and analysis
https://www.naturalmedicinejournal.com/journal/vitamin-k-and-osteoporosis
So, this may be another (confusing) tool in the toolbox to address bone strength and/or density. Wish there was consensus on dosage and efficacy but apparently more studies are needed to determine that. Best to evaluate our own needs with input from our own medical support team.

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Interesting article from Cleveland Clinic. Thanks!

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@trathfon62

I went to an Endocrinologist and a rheumatologist and they weren’t interested in seeing why my bone density was getting worse, they just wanted me to take the strong bone building meds then take Prolia after that. I like to know why something is happening in addition to trying to fix the problem. I eat well, take supplements, exercise daily. It might have something to do with my digestion but I need to get that checked out.

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That’s very frustrating! I’m with you. I want to solve the problem instead of creating more!

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@cmiller59

I do yoga, I walk a minimum of four miles a day, I use the eliptical for 30
minutes on days I can’t walk, I use bands and weights for strength training. I am very active .

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Letting you all know that Margaret Martin PT, well respected in the osteoworld (she is on YouTube, written books, has an extensive website related to exercise for those with osteoporosis, and once a month does a live stream focused on a certain topic regarding exercise) This upcoming Saturday, May 27 she is hosting a live stream where she’ll take any one’s questions. You just have to be affiliated, for free, with her on line presence to receive this type of info of her programs , live stream. Etc …. Go to http://www.melioguide.com

Just listen, or post a question. And if at the time she does it, which is usually at 2 pm EST, you can listen to it , or after the fact if the timing doesn’t work for you. Unfortunately I won’t be able to attend “live”,this Saturday ☹️, but maybe you can and ask your exercise questions!!!

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@tkdesign

I wanted to make a correction. On my MK 4 supplement it is 45mg of Vitamin K per day, not mcg, a pretty large amount.

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I’m glad to see someone else taking that doseage of Vit K.

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@windyshores

@trathfon62 my experience is that once we are past menopause, we lose bone naturally. The biggest drop for me was right at menopause (and also at the beginning of cancer meds that dropped estrogen further). In other words after an initial big drop, for me, the rate of loss eased- but continued. No matter what I ate, what supplements I took or how I exercised.

Tai chi helped with balance and body awareness- and other benefits. I stay away from yoga.

We are living longer. I believe a lot of us will face the need for meds, unfortunately.

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Hi Windyshores,

Wondering if you ever researched taking collagen for bone health. Seems to be some controversy when it comes to breast cancer. Trying to understand this. Thanks

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@anjalima

Hi Windyshores,

Wondering if you ever researched taking collagen for bone health. Seems to be some controversy when it comes to breast cancer. Trying to understand this. Thanks

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I just found out I have a high centromere antibody result which indicates scleroderma, which in turn involves excess collagen that is deposited in inappropriate places (skin, organs, vessels) so I assume taking more collagen might not be a good idea! Not sure about connection to breast cancer and can look up. Related to calcifications????Dr. McCormick recommended it for bones and sells it.

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@windyshores

I just found out I have a high centromere antibody result which indicates scleroderma, which in turn involves excess collagen that is deposited in inappropriate places (skin, organs, vessels) so I assume taking more collagen might not be a good idea! Not sure about connection to breast cancer and can look up. Related to calcifications????Dr. McCormick recommended it for bones and sells it.

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Oh gosh… the journey ever ends! I hope there is some treatment to stop or curtail advancement. Does this complicate your bone meds?

What I have gleaned re: collagen is that breast cancer cells “may” travel along collagen connective tissue. But I also read that it helps maintain suppleness of bones. BC Docs don’t seem to know anything about it.

Thanks for your response and wishing you the best with this added complication. You need a health break ( not the bone kind)!

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@teb

if your dexa results are -1.9 you do not have osteoporosis so I wonder why they are pushing you so hard to take something. I can understand your reluctance. Perhaps you can do some bone blood marker tests to see if you are currently losing bone. If you are not, you *might*be able to maintain with increased weight bearing exercise, lifting weights, diet and supplements. It takes a lot of attention but it's worth it the effort. You can also consider HRT depending on your age and risk factors. That would help you preserve your density. Yes, it is a pharmaceutical but it is a replacement for what we lose in menopause and the estrogen will help to preserve your bone mass in a more natural way than the drug options. I am on it now but wish I had started in my 50s as I wouldn't be in the situation I'm in now.
For those that decide to try the natural route, I would suggest retaking the dexa in a year along with testing your bone markers to see if you are stabilized. I was adamant about not taking drugs and doing it naturally as that's the way I live my life. I did everything "right" from tracking all of my nutrients, 7 prunes daily, a daily 1 hour hill walk in a weighted vest, lifting weights, 1.5 hour dance class 2x a week, hundreds of core reps for strength and stability. I even stood all day when at my computer so my weight bearing was a constant. In the 2 years of doing everything in my power to keep my bones strong, I lost a lot of my spine, going from -2.9 to -3.2. At that point, I realized there was literally nothing I could do to stop this bone loss but to use a pharmaceutical. On Forteo I gained back some of the lost bone but not all of it. It is easy to lose bone but hard to gain it back. Test early so that you can make the important decisions on whether it is necessary to consider pharmaceuticals to avoid further loss that you may have a hard time regaining.

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I have also noticed that the T value of -1.9 is not considered osteoporosis by the WHO (but the T value of -2,5). This T value is not also considered OP here in Europe. I thought that in the US there is a more strict approach, but now this is more clear.

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@windyshores

I just found out I have a high centromere antibody result which indicates scleroderma, which in turn involves excess collagen that is deposited in inappropriate places (skin, organs, vessels) so I assume taking more collagen might not be a good idea! Not sure about connection to breast cancer and can look up. Related to calcifications????Dr. McCormick recommended it for bones and sells it.

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Wendy, how long have you been taking the collagen? I had read about that but I only saw it once and have seen it anywhere else.

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