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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@revbobcoulson

Hi, I'm Bob. I have foot neuropathy, sometimes right and sometimes left, never both at the same time. It occurs mostly at night and wakes me up. I have applied the creams and they work but not as fast and greasy-free as ice-hot roll on that works well and faster. I also notice it when I sit for an extended period of time when working on the computer, but this is daytime and a hint to get up and move around and it stops, if I can't move in a meeting, I sign the alphabet with my foot and it subsides. I can't do this at night because by the time I awake it is game on burning. I have the electrical stimulation test and there was no problem. This started after my second chemo treatment and auto-transplant in 2008, 2006 chemo treatment lasted a year, and the non-Hodkins lymphoma came back. I think it could be related to my blood sugar (intake) in the evening but holding off on sugar does not seem to make a difference. Yes, cancer doc said I make have this as a treatment after effect. Oddly after a week of night attacks it stops for a week or so then starts up again. I am on metformin for pre-diabetes, so I minimize my sugar and carbs intake significantly. I also wear diabetic socks to enhance circulation. I am now purchasing a Cloud Massage Shiatsu Foot Massager Machine. Is there anything else I am not considering doing or check on?

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Replies to "Hi, I'm Bob. I have foot neuropathy, sometimes right and sometimes left, never both at the..."

Hi Bob @revbobcoulson, Welcome to Connect. I also have neuropathy in my feet and legs but I don't have any pain, just some numbness. I'm not sure if you've seen the Foundation for Peripheral Neuropathy but they have some good information on different possible complementary and alternative treatments here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

You might also be interested in the following webinar by the Foundation for Peripheral Neuropathy.
--- Webinar: Chemo-Induced Peripheral Neuropathy: https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/.