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@blossomgirl

What dose of prednisone and cellcept were you on? Also, im suppose to be starting Humira, but am very sceptical and unfavorable about this drug due to what it's made of. Have you ever been on Humira?

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Replies to "What dose of prednisone and cellcept were you on? Also, im suppose to be starting Humira,..."

@blossomgirl, and all...Blossom, why are you considering Prednisone and Cellcept? Are you currently in a flare for Sarcoid? The only thing that ever helped calm a flare for me was Prednisone. Never tried Cellcept. When I was 40, 36 years ago, the only medication offered was Prednisone. I think that was all they had then to treat Sarcoid. In my case, I was quite ill with serious whole-body pain, lung involvement with constant coughing, phlegm, swollen feet, and legs, lesions on my shins and ankles, bad headaches, body pain, and more. It was tough. My diagnosis was at Mayo Florida, which just opened, a lung biopsy. treatment with heavy bombardment with prednisone for about 9 months, then slow, graual tapering. I believe this treatment with lots of prayers and a special healing service put the Sarcoid in remission. I've had small lung flares through the years with a lot of bronchitis and pneumonia, and such, but few real Sarcoid-only flares. I do have some crackled glass on lung x-rays, and now have worsening asthma and brachiametosis???, use a bi-pap with oxygen nightly, but feel blessed to be perking along. I do have other auto-immune illnesses but all in all, I'm happy to be here and able to function.

Have you been to the Sarcoidosis site on Connect? It's full of good folks who've had varied experiences with this illness. Suggest you try it out and see what you think. You may get some really good experienced advice and a bunch of support. I'll see you there at times, as well.

I was on multiple and several prescription medications through the years for body pain. I worked with my doctor to wean myself off all the pain-related meds, and just last month found the Relief I mentioned. I love the ingredients...as my hematologist said yesterday when I showed him the bottle, as I do with supplements I take so the doctors can know what I'm doing and my thoughts AND perhaps learn about a new product to help patients. He said Relief has every known anti-inflammatory herb or spice known to man...and it has CBD and CBG. Good things to fight my body pain.

Be blessings, elizabeth