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Changing Doctors for Followup: Who do I see?

Breast Cancer | Last Active: Jul 14, 2023 | Replies (39)
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@allusernamestaken

Thank you I had double mastectomy, both breasts removed and another surgery afterwards because cancer was still found on chest wall. After I was in the clear they told me I would alternate seeing each doctor (oncologist, cosmetic surgeon, and surgical oncologist) the first 2 years following surgery then once a year up till year 5. That the greatest odds of recurring cancer is within first 5 years. This development is year 7 and it’s in the same general area of the initial cancer, right breast/chest near armpit.

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windyshores | @windyshores | May 24, 2023

@allusernamestaken (love your user name) I have read that if triple negative cancers make it to 5 years, they face less risk of recurrence, but for hormonal cancers, the risk continues to rise. My two genomic tests at the 5 year point bore that out as did the graph on my original Oncotype. But if your risk was low, it probably continues to be low, relatively.

I also had a double mastectomy. Since we don't have breasts, we are not having the MRI's my friends with one mastectomy are having. Noone is checking our chest wall anymore, or our lymph nodes.

I don't like to bother folks with stage 4 but have occasionally asked how it was detected (usually bone, not always) and the answer always seems to be that they were having imaging for something else entirely.

It's easy to feel abandoned with our continuing fears. I hope one of your docs can provide reassurance.

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