I was diagnosed with trigeminal neuralgia 13 years ago. I had tn1 and felt pretty satisfied with Gabapentin. At first, I took 600mg with an additional 300mg. My triggers had been cold air against my face, brushing my teeth, chewing, talking, and the air pressure around me. I would joke and tell friends that I was a walking barometer because I could predict a storm that was out 100 miles. I felt it coming before it arrived.

I moved to a different state with less air pressure and lowered my Gabapentin dosage to 300mg. I had used 300mg for 10 years. Last summer things began to get worse. I had pretty much forgotten that I had trigeminal neuralgia, even though I had not stopped taking Gabapentin. By November I was taking 600mg and in December it was raised to 900, in January it was raised to 1200mg. It is May and I taking 2400mg and 600mg of Trileptal. My tn1 had progressed to tn2 and is bilateral.

I am having difficulty adapting to the pain and the increase that happened so quickly. I check the air pressure around me and notice that with the change in climate, the pressure has risen. Has anyone else experienced a trigger from the air pressure changing? Is there anyone out there who has gone from tn1 to tn2? According to my neurologist, I had been born with the genetic condition trigeminal neuralgia. I am looking for others who can help me cope with the changes. Can you help?

Jump to this post