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@raejones2022

I had a partial thyroidectomy, specimen came back follicular carcinoma. Had a total done 3 weeks post partial. One year later, more thyroid tissue grew, then I had radiation. Gone for good. Now I just had GIST surgery at Moffitt, Tampa. Rare epithelial sarcoma. Have mutation EXON18 that is resistant to chemo. Only treatment: CT abdomen, chest xray and labs. every 12 weeks. Does this sound reasonable????

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Replies to "I had a partial thyroidectomy, specimen came back follicular carcinoma. Had a total done 3 weeks..."

Hi @raejones2022, you've dealt with a lot! Glad to hear the thyroid cancer is "gone for good".

Here is a discussion group where you can connect with other members who have GIST.
- Anyone have experience with gastrointestinal stromal tumor (GIST)? https://connect.mayoclinic.org/discussion/gist-cancer/