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Low Dose Naltrexone and Prednisone for PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Aug 4 6:29am | Replies (85)
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@janielou56

I also am tapering down.
From 20 ml prednisone with LDN
Am sitting/staying at 12.5 (back up from 10) for a month or two or 3.
Thankyou for sharing that in England they allow/recommend splitting the dose so that upon waking there is less pain.
Right now I'm taking 10 ml Pred+LDN after breakfast.
Then 2.5 bf bed.

I was diagnosed with PMR in early February 2023. I was struggling with it probably only 3-4 months bf hand.
I consider myself fortunate that my young PCP nailed it. My last SED rate level went from 77 to 34 ...still high but going in right direction. ✅️
CRP almost in normal range.
I do want to find out it I have GCA without getting that biopsy....is there another way?

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Replies to "I also am tapering down. From 20 ml prednisone with LDN Am sitting/staying at 12.5 (back..."
John, Volunteer Mentor | @johnbishop | May 23, 2023

When my PMR was active, my primary care doc was always asking me about my symptoms and watching for GCA. I think you only have to worry about GCA if you start having any of the symptoms.

"What are the warning signs of temporal arteritis?
The main symptoms are:
-- frequent, severe headaches.
-- pain and tenderness over the temples.
-- jaw pain while eating or talking.
-- vision problems, such as double vision or loss of vision in 1 or both eyes."
--- Temporal arteritis - NHS: https://www.nhs.uk/conditions/temporal-arteritis/

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