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tinalove (@tinalove)

Concerned about the side effects of anastrozole

Breast Cancer | Last Active: Sep 1 6:43am | Replies (1389)

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You're on ……we will post our best 'active imagination' thoughts and perhaps we'll see how unrealistic they really are? Thank you for your kind thoughts. I hope you'll wake to a pain free, stress free day tomorrow!

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Replies to "You're on ......we will post our best 'active imagination' thoughts and perhaps we'll see how unrealistic..."

OK, so here's my first stab at 'winning the competition'….ha ha. I have a weird rash on my torso and arms and have for a little over a year. It comes and goes, but never really resolves. It could be many things…..a strange reaction to the stress I'm under, a change in my body chemistry that causes me to, well, have a rash, an allergy to something or just getting old lady skin. There is a possibility that it's cutaneous T Cell Lymphoma. My Oncologist hasn't ruled out the worst possible scenario and I've visited 3 dermatologists who all have various ideas but instead of visiting the dermatologist my Oncologists recommended and finding out for sure, I'm worry and wait for the worst…….a second cancer (on top of breast cancer). Actually, I spent so much time online looking at skin diseases I could probably be a dermatologist. I had a bilateral mastectomy and it's all across the scar line and only in places where we all have a lot of lymph nodes, so naturally……….I'm planning for the worst (if only I were actually doing something about it). I really feel like this is pretty creative worrying, but I'll wait for your reply and see who wins this first round. Hope you're having a good day today. Relax as much as you can and enjoy each good moment.

You've met your match. I too have a second possible cancer lurking in the back of my mind. I have decided that it is a result of a conspiracy theory so evil that your rash will go away as soon as you hear my story. I am due for a colonoscopy this year. I kew it, but ignored it. Lo and behold, a letter arrives from the colonoscopy doctor…Time for your 10 year colonoscopy! I ignored it. I can see getting a notice for a mammogram or a dental cleaning, but a TEN YEAR test? SO, I mentioned the letter to my internist who said, "Oh yes! I'll call colonoscopy doc and set up an appointment!" I said, "No." I asked about the ColonGuard at Home test and the internist had one shipped to me. I ignored….'Put it in the back of my linen closet. About a month later I received a letter from ColonGuard offering me a $35.00 American Express Card if I would complete the test and send it in. Well, why not? My colon seems fine and all the colons that came before mine on both sides of the family were fine. For $35 I will degrade and frustrate myself. I sent it in and forgot about it, waiting for my "prize". No prize yet but my internist called and said that my test was positive. As you, I worship at the alter of the internet so I determined that the odds were this test was a false positive and in fact the results were planned long before my creepy box of fecal matter was even in the mail. Internist, colonoscopy doc and ColonGuard all in cahoots. It couldn't be clearer to me….Except that I too feel that I have a second cancer. I wake up with the thought daily, then move onto checking my axillary node areas (there are hardly any left) and then come downstairs and dose up on coffee…..Probably bad for both breast and colon cancer. YES! I am planning for the worst and not doing anything about it. Here is what will melt your rash into oblivion. Last week I received my monthly Medicare statement. The ColonGuard (which tests DNA) was billed at $4,000. Medicare and my supplement paid a total of $0.00. However, I was not held responsible for the $4,000 either. So, what's the deal? Who wins? I suppose the internist gets a fruit basket from my colonoscopy doctor at Christmas and the colonoscopy doc gets to bill Medicare for doing a questionable colonoscopy on me. If I ever get the colonoscopy and if it is positive, I won't be undergoing treatment for it. The breast cancer treatments were/are all I can handle. OK, do you surrender? Or do you have a worse example of fertile imagination syndrome? I already have an example of worry beyond belief from when I was 8 years old….60 years ago and it's still with me! You'll have to wait and see!

P.S. ~ I hope our humorous banter doesn't get us tossed off the Mayo Clinic site! One more thing to think about…A knock on the door ~ Men wearing white coats and stethoscopes….."May we take a listen to your brain, please?" SEE? I can't help it!

OK, so I'm giving you this first round as a win! (ha ha). I have been told many times to get my colonoscopy (I just turned 60) by my oncologist. I've done those stool sample tests each year (until this year, explanation later) and they have come back negative BUT I have a history of Irritable Bowel Syndrome and I sometimes have blood in my stool, especially when I was on Arimidex for the breast cancer. This conversation will come up in my next check up as my oncologist has said to me that there is a connection between breast and colon cancer. Also, have a friend whose husband ignored his colonoscopy a little too long and is now going through treatment for colon cancer. Here's the rub on all of this……It's great to catch these things early and have a reasonable chance of fixing them but also if you look long enough you will find things…..it's inevitable. It's a toss up sometimes. Keep doing tests and getting medical intervention and stressing yourself out or accepting the inevitable, we're all going to get something or a couple somethings. I don't think I've given you any comfort here have I? Sorry about that.

Explanation of lack of colonoscopy above and my new submission is as follows – I was let go from my full time job with benefits back in September 2017 because…………my employer said it was too expensive to keep me on benefits. Smaller employer (part of a much larger, well know non profit organization, known for their good works and kindness). They offered me a part time, hourly job, with no benefits. The impetus I believe was that they had just changed insurance plans and companies to reduce their overall cost for all employees. I chose not to stay with a part time, hourly job and no benefits (kind of need those for breast cancer) and one other employee was made the same offer and stayed. The other employee….yup, has just completed breast cancer treatment. We were both 'demoted' to no benefits because we had breast cancer.(Yes, it's illegal). Now I have Cobra and unaffordable benefits, so I simply don't go to the doctor anymore, which I know is scary and which is my new 'anxiety'. A simple check up with my doctor for the breast cancer is around $1,000 (high deductible o $6,000). My doctor is working with me but the prices of any real follow up are out of reach for me. I have been looking for work with benefits and working part time and odd jobs in the meantime but now my husband has gone through 3 months of testing for cancer which might be lung or????? They haven't quite figured it out, thousands of dollars later. I'm hoping that stress isn't what causes cancer because I'm a goner! Your turn and I hope you're having a good day today…anxiety aside.

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