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Replies to "It was around 3 weeks. I have my yearly with my primary doctor tomorrow so I..."
MAC & Bronchiectasis | Last Active: May 31, 2023 | Replies (88)
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It was around 3 weeks. I have my yearly with my primary doctor tomorrow so I think I'm going to have her refer me to a nearby CF clinic. I called them and they said anyone could refer me. I loved it while I was there but I'm not loving them after. It took me 2 weeks to get an ambassador to make my next appointment.
Replies to "It was around 3 weeks. I have my yearly with my primary doctor tomorrow so I..."
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I totally agree with you and I left a message with the Ambassador I originally had but she was out of town and I have not heard back from her either. I am supposed to start inhaled Amakacin and NJH sent it to my regular pharmacy and it has to go to a Specialty pharmacy so they called NJH and spoke to a nurse over a week ago and I still don't have it. Did the nurse or doctor from NJH call you with Genetic test results saying you were indeed positive?