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@SusanEllen66

@lorena1egas @eirrol @gina5009 @bayhorse
Thanks for your input and support.
I’m doing a sleep study on June 13th. Hopefully it will solve the mystery.

Actually, I have done some researching on narcolepsy. The one thing that jumps out at me is the “frozen” body. I have fallen asleep with my hand up holding my coffee, and eating with my hand up holding a fork. But the biggest aha moment was when I realized that I often wake up during the night in my bed, and my arms are up in the air! So, I was sound asleep with my arms up, usually bent at the elbows.
There are several other indicators that could possibly be helpful in determining the diagnosis.

I do have several autoimmune diseases and take medication that typically make me dizzy. I refuse to take any medications that cause drowsiness. That includes the usual ones like Lyrica, Gabapentin, and even regular acetaminophen makes me sleepy.

The one other thing I learned is that narcolepsy is a brain nerve disease. Antidepressants can cause all kinds of trouble. That’s why I am doing the study. Hopefully, I can find a treatment that will agree with my body so I can feel better.

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Replies to "@lorena1egas @eirrol @gina5009 @bayhorse Thanks for your input and support. I’m doing a sleep study on..."

I am 78 .after 3 months severe fatigue and sleeping and many tests.I was diagnosed with Epstein Barr and mononuculosis

@SusanEllen66 I think that having one or many autoimmune conditions limit my options when taking natural supplements or meds. Never know how I am going to react. But I never expected to find difficulties with psychiatric meds so common such as ssri. Before, that has never be a problem for me. Today is going to be 10 days with this sleepy mind eventhough i stopped the ssri already last thursday. I am still asleep and my brain is not working but in a slow manner. I feel angry about loosing so many days, I dont wake up on time. Yesterday I tried to work writing an article and after finishing it, i slept the whole afternoon till today!!!!! I want this med out of my system and Its taking too long!! doctors should be more alert when dealing with autoinmune patients, before prescribing anything. How do you deal with depression or/and anxiety? Which meds work for you without so severe bad reactions? Thanks