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My Mom recently diagnosed with DCIS

Breast Cancer | Last Active: May 23, 2023 | Replies (26)

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@katho3

@blessed 6–I had a lumpectomy for DCIS on 4/4. It was low grade, stage 0, 7mm in size with 6mm clear margins. I am 65 and this was found in a routine mammogram. If it’s not presented to you, check the Sloan Kettering nomogram online (nomograms.mskcc.org) to find an estimated percentage of recurrence in 5 and 10 years for your circumstances. Mine is 6% after 5 years and 9% after 10, with no treatment other than lumpectomy, which seem small to me.

I opted against hormone blockers after medical oncologist said he would not prescribe for his wife in my situation (refreshing response!). Mine is also above my heart, which is a concern for radiation. There is a breath-holding technique which helps to avoid the heart. I have a CAT scan scheduled this week to see if localized vs full breast radiation is an option. My main concern is that you can only have radiation on an area of your body once. It seems like I would want to save that one time for the small chance of a recurrence if it was invasive.

Prayer is what I have found to be a guide. There is no right answer for everyone, only what you decide for yourself, unfortunately. Alternatively, there is promise in turmeric supplements, though not a lot of human research. Best wishes to you in your journey!

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Replies to "@blessed 6–I had a lumpectomy for DCIS on 4/4. It was low grade, stage 0, 7mm..."

Thank you for sharing your decision making process. As you indicated, I also rely on prayer as my cornerstone and my prayer warrior friends have been a blessing.

My situation is a bit differ than yours since I had a higher grade DCIS and larger tumor bed. My oncologist prescribed an AI for 5 years. I am going to meet with a breast radiation oncologist to discuss radiation next. Take care!