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Deciding on radiation or not

Breast Cancer | Last Active: Oct 31, 2023 | Replies (74)

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@katho3

@frogjumper—I, too, am going back and forth about radiation. My diagnosis was low grade, stage 0 DCIS. I had a lumpectomy on 4/4; the lesion was 7mm, with 6mm clear margins all around and hormone positive.

On the advice of my medical oncologist, I am not doing the hormone blocker. The Sloan Kettering nomogram for my circumstances says 6% recurrence in 5 years and 9% in 10 years without radiation; reduced to 2% and 4% with radiation. I have a CAT scan on Friday to determine if I am a candidate for localized radiation vs whole breast. Radiation oncologist says my situation is “special” due to small size and large margins and I may be able to have a much abbreviated course. However, the lesion was over my heart. Proton therapy is not available here, nor is brachytherapy, but I was also told about the breath holding to help avoid the heart.

This is a difficult decision and it seems like I’m changing my mind daily. What makes it more difficult is that there is no clear or right answer. My PCP says the right path for me will become apparent and to go with my gut! Best wishes to you, @frogjumper.

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Replies to "@frogjumper—I, too, am going back and forth about radiation. My diagnosis was low grade, stage 0..."

Thank you frog jumper for your input. It sounds like we have a similar situation except for the pathology report. After speaking with my oncologist and radiology team again yesterday I am back to feeling calm and sure of my decision to have radiation with them. They are all such caring and compassionate people willing to comfort and assure . I am not going to take the medication and my doctor said she supports my decision because of my situation.
My twin granddaughters turn Sweet 16 tomorrow and it has been a such a joy in my life to watch them blossom into themselves. I understand your desire to be around for your grand babies. They bring so much happiness into our lives and that is the best medicine and distraction.
I’m truly grateful for having had a second opinion switching to a team of expert doctors and compassionate care. I’m trusting them and my decisions