I also am tapering down.
From 20 ml prednisone with LDN
Am sitting/staying at 12.5 (back up from 10) for a month or two or 3.
Thankyou for sharing that in England they allow/recommend splitting the dose so that upon waking there is less pain.
Right now I'm taking 10 ml Pred+LDN after breakfast.
Then 2.5 bf bed.

I was diagnosed with PMR in early February 2023. I was struggling with it probably only 3-4 months bf hand.
I consider myself fortunate that my young PCP nailed it. My last SED rate level went from 77 to 34 ...still high but going in right direction. ✅️
CRP almost in normal range.
I do want to find out it I have GCA without getting that biopsy....is there another way?

I'm glad to hear the LDN is helping, even if it's not enough to completely replace the prednisone. I'm just seeing this now; otherwise I would have chimed in... Maybe this will help someone else: My dad has PMR (and is recovering from a severe stroke). I actually have chronic pain and learned about LDN from my own physician, mainly for fatigue, but we hoped to see if it would have a positive effect on some of my other symptoms (GI, central sensitivity). It's helped with the fatigue, but I haven't really noticed other benefits. Anyway, because it's so low risk, I talked to my dad's doctors about prescribing LDN and fought the usual battle of questioning its safety, what is it, how do they order it from a compounding pharmacy, etc. Thankfully, someone was willing to prescribe it, and we started noticing a difference in his energy when we got to 3 mg. His stable dose is 4.75 (as high as we could get without it being too activating). I'd like to think as he continues to taper prednisone it'll continue to help him. Fingers x'd.