← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@ronschultz

I'm kinda slow and skeptical and my memory not that great either about the genesis of my ailment. First of all it took quite a lot of testing before I was diagnosed and then with something I'd never heard of (after Covid another recent sickness sprung on us out of the blue) I felt it was just a catchall for a myriad of complaints. Bloodwork was the clincher apparently too many white blood cells and inflammation. Wallah! PMR! But I always hear of joints being affected which I do not experience but painful muscles I certainly had before prednisone. But what I suffer most from is tight muscles in my limbs. They've shrunken from when I was totally laid up but now they are as hard as rocks and woefully impede my flexibility and this is my major beef and nobody else seems to have this problem. It must be an auto-immune disease symptom because like any other sickness one usually starts feeling a little progress but with this it has not given an inch. The doctors are puzzled.

Jump to this post


Replies to "I'm kinda slow and skeptical and my memory not that great either about the genesis of..."

I'm sorry to read this. I hope that your doctor can get you on the right treatment soon.

Hello@ronschultz please start keeping a pain journal - i divide the day into 3 parts 6am to 2 pm , 2pm to 10pm and 10pm .sleep till waking. Because i was doing this for a tweaked knee in February ( Zumba!) through PT sessions i know exactly when and how severe was the Bilateral Pain i experienced in all four limbs! google "gel phenomenon" and PMR -- this is the word i am using. Hang in there !