I see many people here share your situation and I am one of them. You have my sympathy and share your frustration.

Each Kaiser doctor has their own take on my distended belly - or simply changes the subject when I ask for help.

The gastroenterologist says an x-ray showed feces in my colon which means constipation which means I should take Motegrity. I think this is very unlikely as I understand a high fiber diet (like mine) with constant passage of feces through the colon is often misdiagnosed as "constipation". My internist says I should see a functional doctor - out of plan and out of my financial reach. The pulmonologist says it could be my intestines that are forced up and out due to my severe kyphosis from multiple spinal compression fractures that has me very bent over.

On my own, I have gone to thrift stores for larger size blouses and used decorative scarves in a attempt to disguise my misshapen body so I am less embarrassed when I am outside. Issues you didn't mention were pain - good you don't have it other than the pain of having your body change in an undesired way.

Also a persistent yeast infection caused by the distension creating a warm, moist home under my breast barely reduce by 2/day Nystatin powder.

I plan to try eliminating the gluten in my diet to see what effect it has - challenging for a ww bread, cracker and pasta eater. Also, I may ask for a second GI opinion. Your description of your situation has helped me focus on my own distended belly, unfortunately mostly ignored due to my other health issues.