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What to do if EGFR is 19?

Kidney & Bladder | Last Active: May 26, 2023 | Replies (35)

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@collegeprof

@gingerw
I thought oranges and orange juice were no no's for CKD because of high potassium levels. I believe those on dialysis are allowed many food choices that we could only dream about such as meat or dairy products. Whenever I go to Mayo, I sneak in a latte with oat milk at Starbucks as that is incorporated at the Phoenix Mayo site. Also interesting is that this thread talks about food and diet, which is quite important, and not the equal importance of exercise as it relates to eGFR. Last thing, Ginger, as many of us have followed your journey, but how are you feeling phyically as a result of your dialysis? Some of us are in late stage 3B or 4 and are desperate that we go no farther.

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Replies to "@gingerw I thought oranges and orange juice were no no's for CKD because of high potassium..."

@collegeprof I actually have low potassium! My oncologist feels it is a result of the 80mg furosemide twice a day, depleting my system. We discovered a slight heart murmur, and after starting prescription potassium supplements, and incorporating some potassium rich foods into my diet, the murmur has gone away. I have never been a big fan of dairy products [except an ice cream cone once in a while!], but stayed away from bananas and oranges for over a decade. By golly, that first sip of hand squeezed orange juice was like nectar to me!

In this season, as it is warming up, and the weeds have taken over, I am getting out right at sunrise to "pick a bucket or spend an hour" doing some yard work. Then come inside to have a cup of coffee, some nutrition, and hook up to dialysis. This schedule is working for me right now.

As to how I feel physically. It took me a bit longer to feel better once I started dialysis, seeing that I am also an active cancer patient. Probably 3-4 months for me, where others feel better within weeks. My energy is better, the blood cancer numbers are better. I believe that is due to the dialysis cleaning my blood/system, and allowing the chemo medications to work better. It is an adjustment that I take in small steps. No, I won't be going out to do a marathon run, but that was never on my plate anyway.

You're absolutely right. Diet and exercise play vital parts in our health journey. We are each unique people, and have individual needs. Being in this community, we can share what has worked [or not!] for us, and others learn from us. I am grateful.
Ginger