You are absolutely right!! Especially some of the testing, it bordered on barbaric.
What happened in my case was that the mega-doses of Prednisone that I had to take when I was diagnosed with GCA in 2019--changed my treatment. I was on 125mg per day in an attempt to save the sight in my right eye, I lost the left overnight. After 45 years, seizure free and on a maintenance dose, I started having auras--I remember that feeling so well.
I was living alone at the time and I called my neurologist and said very firmly..."I cannot have a seizure because I know my family will be really concerned about my well-being. Please do something!"
I wanted to stay independent..I was almost 79.
I was given IV Keppra and dropped to 80mg of methylprednisolone. I was in the hospital for a few days to be monitored.
All ended well, no seizure, and I'm quite thankful for my right eye....I'm fine and have full vision there now. I just saw my neurologist today, and I just don't want to rock a boat that is sailing smoothly at age 82. He agreed. There are some other meds I've gathered I'm looking forward to junking.😕
I think it is wonderful how far treatments have come and you gave me some great advice. Thanks!💞