Taking Tamoxifen long term, between 5-10 years after breast cancer.

I had to decrease from 20mg to 10mg Tamoxifen. I have triple positive DCIS with microinvasion. I had a mastectomy no lymph node involvement. But the side effect for me have been dizziness, anxiety, brain fog, and heavy menstrual flow. I took myself off completely for 3 weeks and felt normal. Oncologist says I need to get back to the 20mg. I feel like this is not quality of life. I am having a tough time being on this medicine. It seems like everyone here tolerated it well.

I had to decrease from 20mg to 10mg Tamoxifen. I have triple positive DCIS with microinvasion. I had a mastectomy no lymph node involvement. But the side effect for me have been dizziness, anxiety, brain fog, and heavy menstrual flow. I took myself off completely for 3 weeks and felt normal. Oncologist says I need to get back to the 20mg. I feel like this is not quality of life. I am having a tough time being on this medicine. It seems like everyone here tolerated it well.

Hello. I had most of the symptoms you had on Tamoxifen. I went down to 10 MG. but now I have gallstones, so I can't continue. I have osteoporosis, so only Tamoxifen is bone protective. There are clinical trials for 2 natural substances. One is Turkey Tail Mushrooms. 3 grams a day, ( at least). The other is Indole-3-Carbinol. I take 200mg, but may double it. J have no side effects, and I know they are being looked into by legitimate researchers. Turkey Tail has been used, by doctors in Japan, for decades. It is for you to read about these supplements, and make your own decisions, of course, but these seem to be the natural way to help keep breast cancer from returning.

Hello, your post was so very helpful. I took Tamoxifen for 3 years 20 years ago but stopped after I started having joint pain. I recently had another lumpectomy and the Dr. wants me to start on AI’s (which I’ve decided not to since I have osteoporosis) or Tamoxifen. I thought about going back on that for awhile to see how I do. I was also looking for natural ways to help prevent my breast cancer from returning. I feel like I am “rolling the dice”when it comes to all the side effects these drugs can cause. Do you have a website that you go to for information on what brands of Turkey Tail and Indole-3-Carbinol that are reputable. There are so many choices out there in the “vitamin world” and it can be so confusing.

I use OM Turkey Tail. And Indole-3-Carbinol, NOW brand. You never want any supplements made in China. Dr. Sherry Rogers has tested supplements from her online store, called N.E.E.D.S. She is an Environmental Health doctor. Both she, and the doctors at The Environmental Health Center, in Dallas Texas, test for estrogen- mimicking chemicals. They are the ones causing the rising rates of breast cancer. I was exposed to high levels of Chlordane as an adolescent, and tested for abnormally high levels at age 42. I am saving up my money to be retested. There is a sauna protocol, to detox, at Dallas but I never tried it.

I have been on Tamoxifen for almost 10 years now. Never had any side effects. Guess I am one of the lucky ones. Everyone reacts differently but I would probably say if you can tolerate it, take it ! Also my bone scan says I have no osteoporosis and I will be 72 this year. It was my understanding that the Tamoxifen helps bone density.

I use OM Turkey Tail. And Indole-3-Carbinol, NOW brand. You never want any supplements made in China. Dr. Sherry Rogers has tested supplements from her online store, called N.E.E.D.S. She is an Environmental Health doctor. Both she, and the doctors at The Environmental Health Center, in Dallas Texas, test for estrogen- mimicking chemicals. They are the ones causing the rising rates of breast cancer. I was exposed to high levels of Chlordane as an adolescent, and tested for abnormally high levels at age 42. I am saving up my money to be retested. There is a sauna protocol, to detox, at Dallas but I never tried it.