Mastectomy instead of lumpectomy

Posted by clynnford @clynnford, May 12, 2023

Newly diagnosed, yesterday! My pcp had breast cancer and so she filled me in a bit. She mentioned lumpectomy then maybe moving on to mastectomy. I'm thinking I want the mastectomy, since my biopsy report was graded 7, 9 being the worst. I have an appointment today with the surgeon.🙏

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@clynnford

Thank you so much for sharing! I am 61 yo with HER2+ stage 2. Just met with an oncologist who recommended chemo / 6mo. I am waiting to see the surgeon and waiting for BRCA results. I also have an autoimmune disorder and so am very concerned with the chemo and steroid. I am still not clear as to why Docs just don't do a mastectomy. Do you wish you had gone straight to that vs after your chemo?
Best,
Cheryl

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Get a second opinion. I was diagnosed stage 0, DCIS, grade 3, estrogen positive initially with 2 and 4 mm areas with the follow-up mammogram. MRI follow-up showing a 8x7x2 cm questionable area. I wanted to be as conservative (?) with lumpectomy, radiation and estrogen blocking therapy for 5 years ( really is that conservative tx?). The questionable area was all positive for same diagnosis so the lumpectomy which was quite agressive being 8 cm had 3 unclear margins. Top of the breast made a lumpectomy of that extent possible … did shrink a cup size on that breast. I had a 2 month wait for my second surgery. ( other breast from MRI had not the greatest tissue and a negative biopsy) Decided to go with a double mastectomy and silicone replacement reconstruction. (2 hour surgery) This produced clear margins and sentinel nodes. 1.5 cm of positive DCIS in pathology. Now no radiation or estrogen blocking therapy. I don’t have to return for 6 month MRIs. This was 5 weeks ago. I am 65.5 years old and the replacement choice was a faster recovery than using my own tissues that required a 12 hour surgery ( under with general anesthetic) and 12 and weeks of recovery. At 65 I want to recovery and get on with life prior to cancer. Cancer free and just finished my first strength class! So many facets and so many different diagnoses… good luck and prayers to all starting this journey!

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@dolphina3

Thank you. I live in the Maratimes Canada so will try but specialty shopping is some times limited. I will try a "bra shop" they might be able to help.
Thanks again.

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Have you tried Jodee's In Redding Ca. They have special operators to help in making decisions and a booklet showing their products
Gina5009

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