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NDPH: CSF Venous Fistula as Cause?

Chronic Pain | Last Active: May 22, 2023 | Replies (12)
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@quazar

I found a Facebook group, "NDPH Support Group", and it's helpful. People share about their treatments and experiences. People rant and lament. Rules of the group are typical - have to have an NDPH diagnosis and be respectful/ no bullying, etc.

So do the Ketamine infusions help? Those are next on my list to try, but if I have a CSF leak, it can be fixed. So I'm trying that first. If no cure, then I'll focus again on management. Have you checked for CSF leaks yet?

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Replies to "I found a Facebook group, "NDPH Support Group", and it's helpful. People share about their treatments..."
l1ll1anfaye | @l1ll1anfaye | May 21, 2023

I will look into the support group. Thank you for the information. I will start the ketamine infusions this week, so I will let you know when I have completed them. I have not heard about a CSF leak but plan to ask my neurologist. Thanks again. The

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mikaylar | @mikaylar | May 21, 2023

Why not try the Ketamine nose drops first. I understand IVs are brutal - 5 days in hospital with side effects.

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