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NDPH: CSF Venous Fistula as Cause?

Chronic Pain | Last Active: May 22, 2023 | Replies (12)
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@l1ll1anfaye

I am in Denver, CO. I will receive the Ketamine IV treatments from an anesthesiologist who has a private practice. I have tried so many other interventions. I am having to take partial retirement this summer due to this condition. I may not be able to work at all ultimately. Are there any support groups for this condition?

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Replies to "I am in Denver, CO. I will receive the Ketamine IV treatments from an anesthesiologist who..."
quazar | @quazar | May 21, 2023

I found a Facebook group, "NDPH Support Group", and it's helpful. People share about their treatments and experiences. People rant and lament. Rules of the group are typical - have to have an NDPH diagnosis and be respectful/ no bullying, etc.

So do the Ketamine infusions help? Those are next on my list to try, but if I have a CSF leak, it can be fixed. So I'm trying that first. If no cure, then I'll focus again on management. Have you checked for CSF leaks yet?

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