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(CKD) 2 year clock running out. I’m fading out.

Kidney & Bladder | Last Active: May 21, 2023 | Replies (9)

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@jbc44strongest

Honestly, the whole transplant thing was never on the table for me to begin with that was an initiative. Family members took on my behalf. So in terms of double kidney transplant is basically me hearing the doctor say you need two new kidneys you have two bad kidneys. I am fortunate and blessed that I do have a lot of matches, but I am choosing not to go that route. I’m leaving with what I came here with. I’m also not willing to take years off of somebody else’s life for a few more years of pain of mine. I think this is a private message to you. I think I’m starting to get this down pat. Lol. I smile every day Ginger!! I’m a Capricorn I am a little bit of a leader but I understand your comparison to spokes on a wheel, which I also can put that hat on as well I do every day. But in terms of working business, I tend to take the reins. One of the things I did when I got diagnosed and was going through those awful surgeries was I went out and I bought my dream car. So every day when I come out and I get into the car, no matter where I’m driving no matter what I’m doing. I have a smile on my face. I like to see all the people smile every day I do my best to take care of my parents and to see my family smile makes me happy. I am in very good control of my diet. I have to be as you know. It takes me a very very long time to just digest certain foods. So my menu is limited. Lol I’ve been doing a lot of traveling lately , basically trying to cram that bucket list make as many checkmarks as I can. One of my good friends at the gym says to me I don’t understand how you smile every day Jeff and how you always just stay positive and you’re laughing and always in a good mood I just don’t get how you could say. This was a good year. I reply I’m here I am here. Today’s a good day. Yesterday was a good day as bad as it was it could be a lot worse. There are a lot of people that are more sick than I am that are in worse situations that I’m in and I’m very conscious and aware of that. Now the Bible says you don’t get in to heaven by doing works but I’m hoping I get a good mention in honorable mention. Lol I do not do social media but I am very happy that I found this platform. My question is what are you doing to smile Ginger? Also, thank you again for the replies the hugs and the help. It’s much appreciated!

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Replies to "Honestly, the whole transplant thing was never on the table for me to begin with that..."

@jbc44strongest Jerry, this is again in the public forum. If you click on the icon just above mentor on my name, it will go to my profile. you can read some of my background, see the posts I have made, etc. And, there is a "send private message" button you can use to send one to me.

This morning I had the pleasure of virtually attending a zoom support group for multiple myeloma patients. Of course, it was early here, 8a.m.! What puts a smile on my face is to do for others whenever I may be able to. I make knit hats and scarves all year 'round that are handed out at our local food bank in the cooler weather. I make small quilts for the foster child program in our local county. I offer my experiences here on Mayo Clinic Connect, and at my dialysis center, to assist others on their own health journeys. I am an elected official in our little town, serving as a city councilperson. My overall goal is to make a difference however/whenever/wherever possible.

What is your dream car? Its color and name? sorry, I name everything! My car is Maverick.
Ginger