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Discussion(CKD) 2 year clock running out. I’m fading out.
Kidney & Bladder | Last Active: May 21, 2023 | Replies (9)Comment receiving replies
Replies to "Good afternoon everybody. I just would like to take the time out to thank everyone for..."
@jbc44strongest Hi Jeffrey. All of your posts so far that I see are published on the Connect site, and not in a private message to me. And really, i think that is a good thing, as you offer your story for more people to read. They can nod their heads in agreement and know they are not alone, too! Sometimes feeling like there may not be anyone else who feels like you do, can be so lonely, right?
So, it sounds like you are not on dialysis at this time. I am not aware of anyone being able to be transplanted with two kidneys. All my experience and research is a single kidney transplant. Sometimes a diseased kidney may be removed. Do you know what your eGFR [estimated glomerular filtration rate] is at this point? At 20, they can start listing you for a transplant and start the transplant evaluation. Some people may try for a living donor and a preemptive transplant. for myself, i cannot be transplanted because of my active blood cancer multiple myeloma.
There is a lot to handle with chronic kidney disease, and it is a challenge to do the best we can to help ourselves get as healthy as possible. We need to eat right for our unique situation, and be an active participant in our care. Our medical care team is like the spokes on a wheel, and we are the hub. Everyone works together.
What are you doing for yourself this weekend? What will you do to make you smile and enjoy being here?
Ginger