1. < Neuropathy

MRI was useless detecting anything relevant for neuropathy in feet.

Posted by louise@lou @suzed, May 13, 2023

I was disgusted with results of MRI. The findings were slim: mild sesamoiditis, stress, arthritis, and artifact in little toe. That's all when I can barely walk? My sesamoid bone is hugely inflamed even with taking Pregabalin, and lidocaine patches don't help. My toes are numb (almost like frostbite) and I truly thought the MRI could pinpoint the damage as my last resort. My pain specialist hasn't been much help either in controlling or finding the root cause of peripheral neuropathy. Why is this SO difficult, and are there any caring and mindful doctors left who actually know what they're doing? Not in my case.

Interested in more discussions like this? Go to the Neuropathy Support Group.

tonyde | @tonyde | May 19, 2023
In reply to @suzed "Have yet to speak with pain specialist, but he's calling today so will definitely ask him..." + (show)
@suzed

Have yet to speak with pain specialist, but he's calling today so will definitely ask him about Vitamin B12 injections. Shall find out if he could prescribe a specific regime for me. Anything to reduce nerve damage would be extremely helpful.
Thanks again, Tony.

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I found an article online that the Mayo Clinic is currently doing research on the impact of vitamin B12. Make sure your pain specialist knows that. It may take some time to work, I suggest you have 3 injections 2 weeks or so apart.

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66vet | @66vet | May 19, 2023
In reply to @billwb "Yes, I have MGUS too, which came with the Covid vaccine. Have not had any advice..." + (show)
@billwb

Yes, I have MGUS too, which came with the Covid vaccine. Have not had any advice on how to get rid of it.

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Don't know about getting MGUS from Covid shot.....never heard that before. Mine is another result associated with Agent Orange. You can't "get rid of it" but pray that you don't get some of the other medical complications associated with it.....Cancer. VA found my MAGUS in 2011 doing a broader blood work than usual. Hang in there, you are not alone.

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vlpr | @vlpr | May 20, 2023

For peripheral neuropathy pain, I was prescribed a generic Cymbalta. It helps with pain, but not the numbness.
Fortunately, I only have numbness in the ball of my feet and in the toes.

The med deals with symptoms, not the cause. I don't think there is anything that can get at the cause or prevent spreading of the neuropathy numbness.

Research is needed. Too many deal with this after chemo or other causes.

Wishing you the best. I had not heard about B12 injections. I will ask about it.

Thanks. vlpr

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davidpn | @davidpn | May 20, 2023
In reply to @cher27 "Hi. Are you talking about B12 injections? There are several B vitamins. I was told by..." + (show)
@cher27

Hi. Are you talking about B12 injections? There are several B vitamins. I was told by my neurologist to avoid B6. Your symptoms sound exactly like mine. Thank you!

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Mine also said to avoid B6. Too much can be toxic, if I remember correctly.

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