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Anyone have cancer with unknown primary?

Cancer | Last Active: Apr 23 8:48am | Replies (100)
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@elliwiemers

I do as well. Diagnosed March 2021 with Neuroendocrine cancer of unknown origin, bone, brain and lung metastases. Several wonky characteristics make my cancer a conundrum , however, I get wonderful treatment at Mayo in Rochester, MN and Fairmont, MN. I have been through many therapies, each with some success as my wonderful docs continue to research. I am in good hands.

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Replies to "I do as well. Diagnosed March 2021 with Neuroendocrine cancer of unknown origin, bone, brain and..."
Teresa, Volunteer Mentor | @hopeful33250 | May 22, 2023

Hello @elliwiemers,

As someone with a history of NETs (three surgeries for NETs in the duodenal bulb), I would like to invite you to the NETs discussion on Connect. Here is a link to the many discussions you will find there.
--Neuroendocrine Tumors
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

You might be especially interested in this conversation,
--Lost with No Confirmation
https://connect.mayoclinic.org/discussion/lost-with-no-confirmation/

You mention many areas where NETs have been found. How are you feeling? Would you share what treatments you have had?

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gailmerz | @gailmerz | May 22, 2023

A fellow cancer patient. I have neuroendocrine cancer. Diagnosed 3 months ago, but like most it took years to put a name to all my symptoms

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