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Thankyou. Your experience sounds very similar to my own and gives me a ray of hope that I have almost abandoned.
Once I did have a sudden onset of severe vertigo when I turned around to look behind my back in my car. Sounds like the compression you describe. Usually what happens is I wake up with a severe issue that puts me down for days, and sometimes it goes on for months in a less major way (I can walk and do things) day and night. That could happen as a result of a sleep position. these things make sense. I just wonder why it lasts so long-sometimes as much as 10 days.
If I don't do something now I cannot continue on because my life is being sapped away to the point where I am not really functional.
I am seriously considering starting fresh with a new specialist. CT scan sounds like it could help diagnose. It would be helpful if I could get pain meds for the headache. At least that would relieve some of the misery but have not been afforded that by dr. I have allergy to certain anesthesia. Before I was aware of this issue surgery kept me "under" for days so I hope to avoid that at all costs. I need to find a PT that really knows about alignment. So far I don't think I have met one. Do they use the CT scan or can they tell by palpation? If the latter I can go right away.
Thanks again, The info about your experience was an eye opener.
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@krisjb1 My physical therapist can just feel with her hands to see if my vertebrae are aligned. You have to lay on your back, so the muscles are on slack, and then it is possible to feel it if the lateral spineous processes are aligned. A good manual therapist can do this. Then if they figure out what muscles are too tight and pulling it out of alignment, these can be addressed. My PT does myofascial release to loosen the muscles and get it moving properly again. Here is our MFR discussion.
Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
You can search for provider at http://mfrtherapists.com/
I do think your experience and mine are very similar. I don't have deterioration at C2 through C4, but issues because of muscle spasms. If there is spine deterioration there, it can probably contribute to the issues. I have been helped a lot by my physical therapist and have learned a lot from her. You're welcome. I'm glad I could help.