I went to NJH in December. Came back with very little difference in my routine. But I’m glad I went!
What they changed was my nebulizing routine-to use the neb cups that connect to the Aerobika and nebulize through the Aerobika while using my vest. So I use all three at the same time.
If you have confidence in your current doctors, then maybe you don’t need to go. I didn’t have confidence in my pulmonologist and didn’t like my ID doctor. They wanted me to start the antibiotics right away even though I had no symptoms. My pulmonologist did start me on airway clearance with 7% saline. The ID doc didn’t think it did anything. Other than the airway clearance, my pulmonologist had nothing else to offer. I was diagnosed through a bronchoscopy and after 9 months when I started coughing up sputum, she never had me send in a sample.
I had to find out how to use my nebulizer online and then later learned about how to clean and sterilize it from others with NTM.
I had to send in a sputum sample to NJH months before my appointment. It showed no NTM. So I would have been taking the antibiotics for no reason. It doesn’t mean I might not need them later.
I enjoyed being able to converse with doctors and staff who know my condition well and not just on paper and have a lot of questions answered. Of course not all my questions were answered but I’m glad I went and I will return for a follow up.